Saturday, June 5, 2010

The chest x-ray looked better today! She may be able to get rid of one dose of the Diurel tomorrow. We'll find out after tomorrow's chest x-ray. Julianne's electrolytes looked better today, so that's good news as well!

I don't have much medical news to report today. We spent the day doing a lot of walking around. Julianne is no longer content to stay in her bed. We like it that way! It means she's feeling better. :) She walked around a lot by herself today. She wasn't feeling up to stepping up steps, but she just needs more time to recover. She was off her feet for almost 2 weeks. We looked at fish, went back to the garden, looked at the balls, went to the CVS that's in the hospital, played ball in the Patient Entertainment area, Julianne met friends in the halls, played ball in the garden, fed her mommy and daddy french fries, rode the elevator that stops at every floor, drank another 60ml through a straw and ate almost a whole jar of pears and a 1/2 jar applesauce. Now she's conked out!

Funny thing, it's another Louisiana gathering up here as we've already met 2 more families from Louisiana and we know 2 more that are on their way this week!

Below is a great picture. Its Julianne's monitor! Look at those Oxygen Saturations on ROOM AIR! I can't remember if I mentioned this or not, but Julianne has a non-fenestrated, extra-cardiac Fontan. Dr. Pigula ended up not giving Julianne a fenestration because her pressures were so good in the cath lab!! Apparently this is not something they do all that often here. It can mean a little extra fluid draining time, but it also means higher O2 sats sooner AND it means we won't need to have a fenestration closed via cath in a few years. The change came as somewhat of a surprise to us, but I'm really happy she's doing so well with it. :)



Taking a picture with Minnie

Watching the bouncing balls with daddy
(it looks like Kent and Julianne are almost transparent! Ha!)

Statue in Prouty Garden

Dr. Julianne...always on call, even when recovering from her own surgery. :)

Today was another good day! Julianne gets a day off from labs tomorrow!!! YAY!!! That will be great! We are thanking God for so much and praying for Julianne's continued recovery. He is always good. Have a wonderful Sunday!!



5 comments:

Anonymous said...

Hoorah! GREAT SATS INDEED! Oh and Hoorah for all the eating and drinking with a straw too! What wonderful news! I love those garden pictures ..Julianne with her statue friend. I also like the interesting ghostly shot through the ball dinger! Love you all very much! Can hardly wait to hear your heading home. Hugs and kisses Grammie

Anonymous said...

Oh this is all such good news! So happy she is feeling so much better. And the pics are great!
Love u all, Aunt Gnome

Anonymous said...

I bet everyone at the Childrens Hospital knows Julianne! It looks like she owns the place.

I just can't thanking God for all his blessings! I know that I haven't been there to see any of the set backs but it just seems like for the most part everything has gone as the doctors had planned or maybe even better.

I will continue to pray for her continued improvement.

Every picture of her is cuter than the other. Maybe the doctors outfit is not such a far fetched thought. She may one day be a doctor as she finds out as she gets older how the doctors saved her life. SHE SURE IS SMART ENOUGH:)

Love to all of you,

Aunt\Great Suzette

Anonymous said...

I bet everyone at the Childrens Hospital knows Julianne! It looks like she owns the place.

I just can't thanking God for all his blessings! I know that I haven't been there to see any of the set backs but it just seems like for the most part everything has gone as the doctors had planned or maybe even better.

I will continue to pray for her continued improvement.

Every picture of her is cuter than the other. Maybe the doctors outfit is not such a far fetched thought. She may one day be a doctor as she finds out as she gets older how the doctors saved her life. SHE SURE IS SMART ENOUGH:)

Love to all of you,

Aunt\Great Suzette

Anonymous said...

Praise God for the wonderful news! It sounds like you have been touring the hospital grounds a good deal and what a wonderful thing!! Looking forward to hearing another great report. A family that we met last May is headed back to Boston this week for another surgery for their son, so we have them in prayer as well.

God bless!
Melinda