Sunday, September 20, 2020

Happy Birthday to her!!


Yep, it's a birthday!! Today our baby girl is 13! You read that right, 13! Crazy, I know! Where has the time gone? We are so thankful today, and always, for the way the Lord has cared for her and strengthened her. The last 6 months have not been the easiest, thanks to a new favorite/most hated word, "social distancing", but they've been good. This year has been so good and now we're on to a new one. Every year older Julianne has become I always think, "oh, this is my favorite age" so I have no doubt that 13 will bring more of the same. 😊

This year we have seen Julianne become more responsible in caring for herself, more diligent in sticking to her commitments, and after many years of trying... she learned to ride a bike! She's even taken on being a volunteer, virtual PreK homeschool co-op teacher! It's really been a wonderful year. We are so very thankful. 💓

Oh and also, Julianne started 7th grade! Here she is with her favorite classmate / faithful companion:

Ahh...what a great day today has been. 💖 Julianne is doing wonderfully health-wise, school-wise and comedy-wise (she's a really funny girl). Thank you all who continue to pray for our girl! We are truly grateful!

Monday, December 16, 2019

Our Boston Trip

     Hi there! Julianne here, and I'm making my first blog post. This blog post is about my trip to the north east and 3-day trip to Massachusetts with my mom and my grammy. Our journey to Boston was really fun and it went like this:

     Day 1, our plane left Baton Rouge at 9:45 A.M and arrived in Boston at 4:03 P.M. First, we went to the hotel that we were staying at and stayed there for a while. Next, we went to the food court right near children's hospital. Then we went into the children's hospital to look around a little bit (it did not look like the Boston Children's Hospital when I was 3 1/2) and ate at Bertucci's. Here are some pictures of the first day we were there.
I carried my suitcase all by myself
Talking to Daddy


                                                                  
Food Court

                          
   
     Day 2, we went immediately to the hospital and ate breakfast. Then a lady came and talked over my test with us and told us about the doctor. Next, the lady took us to meet the doctor and then he went into his office with me and I began my first test. After my test we went to see the outside of the Devon Nicole house. Soon after, we went around and saw the city and Quincy Market where I bought my pink toy Cadillac. After that, we saw a very energetic girl playing the violin to "Don't Stop Believing" and I tipped her. Later, we road the subway back to our hotel. Now here are the pictures of the second day.
                                                   
Devon Nicole house

An 11 year old tween in the middle of Boston

Quincy Market
                                        

     Day 3, we ate at the hospital's cafeteria again, and I loved it just like last time! Then I had my stress test where I had to be on a bike with lots of stickers. Just looking at the picture makes me smell the oxygen that I wore on the bike. From there, we visited the rooftop garden. (they moved it to the roof of the hospital) After that, we went to the State house and I talked to my Maw-maw on the phone across from it (she was very concerned about me). Next, we went to Brigham And Women's Hospital where I was born. Now for the pictures.
Rooftop garden
                                                      
#bostongirl

Boston's state capitol building
                                         
My birth hospital
                                       
     Day 4 was just departure. Our plane left at 12 something P.M. I had a great time on our three day trip to Boston! It was a fun three days. Now for the final day picture.

Waiting for our plane to Atlanta and eventually back to Baton Rouge
                                     

Monday, April 29, 2019

We're Still Here!

Hi everyone! I just wanted to share with y'all that Julianne is headed to Boston for Neurodevelopmental and Cardiac testing that is part of a long-term study she's been in since she was an infant. You know those studies that say, "We followed 345 people for 20 years...." and you're like "who does a study for that long?" well it's Julianne and many of her heart friends! All testing is non-invasive and will be done over a couple of days. My mom will be joining Julianne and I and we hope to get to do a few fun Boston-y things while we're there!

We would appreciate prayers for Julianne that she would receive a good report and that she'd be patient and calm during the process. We are so thankful for her and for the continued good health God has allowed her! She is excited to do this and to get to see the city she's seen pictures of and heard so much about but doesn't remember. :)

I hope to begin updating more on this blog, rather than Facebook, because I miss it!  Also, Julianne is really loving writing these days and she plans to post a few things as well! So, hopefully you'll be hearing from us a lot more often!
Orange Beach, November 2018

Thursday, December 13, 2018

Wow! It's been a long time!!

Julianne is doing GREAT! She had her annual Cardiology appointment a couple of months ago where they upped her Enalapril but other than that no changes. We are thanking God for Julianne's continued good health!

I also wanted to share a video of Julianne singing and playing piano at her home school co-op variety show yesterday. We are so thankful for the boldness and courage God has given her!








Monday, February 20, 2017

2nd Annual Heart Hero Hustle

Hi everyone! Last year a very sweet lady that Kent used to work with made this beautiful quilt for Julianne out of all of the past years' heart walk shirts!
I'd been contemplating ending our team Julianne shirts for a little while and with this quilt complete, I think it's a great time to end the shirts for now.

In addition, this year, instead of the American Heart Association (AHA) Heart Walk, we are asking Team Julianne to attend the Louisiana Pediatric Cardiology Foundation (LPCF) Heart Hero Hustle with us on Saturday, April 1st! 2nd Annual Heart Hero Hustle

The AHA is a wonderful organization and we are truly, truly grateful for all they do to keep hearts healthy! We will continue supporting them in any way we can! However, the LPCF is a local organization that provides grants to families (including ours) travelling for heart surgeries. Just take a look at the grants they provided in 2016!


The LPCF also provides free heart screenings for teen athletes. You know how you hear those stories about a healthy teenager suddenly collapsing on the soccer field and dying? Extremely sad. This is what the LPCF is trying to prevent with these screenings.
"Each athlete receives an EKG and Echocardiogram, both analyzed by a local pediatric cardiologist. To date, LPCF has screened over 4,500 student athletes from high schools in the Greater Baton Rouge area and beyond. Over 300 athletes have been identified as having a cardiac abnormality."
They're doing so much good in our area that we feel Team Julianne's support would be best used by the LPCF! I would love to tell you more about the LPCF! Ask me when you see me! Also, check out the website www.lpcf.com  We would LOVE for you to join with us in supporting an organization that's helping local kids, just like Julianne, survive and live full lives!

So, if you would like to join us for the LPCF Heart Hero Hustle here's what you do:

1.  Read the information about the Heart Hero Hustle and decide if you want to do the 5K, the 1 mile fun run or the awareness walk or a combination of those!

2. If you're doing the 5k or 1 mile, register for either the 5K or the 1 mile fun run on the website. Both of these come with a t-shirt. If you're doing only the awareness walk it is not necessary to pre-register, however participants are encouraged to order shirts to support the LPCF! Order shirts here. 

4. Pick up your race packet and/or t-shirts (you can also have your shirts shipped) or let me know and I may be able to arrange to pick yours up!


5. Personalize your t-shirt with Julianne's name on the back (you can DIY it or when ordering your shirt they can personalize it for you for an additional fee) or wear a "Team Julianne" button! Let me know if you need a button as I will need to order them ahead of time. They're 75 cents each. I need all button orders by Sunday, March 12th!


2.25" Button/Pin Available for shirt personalization
6. Meet us at the Lamar Dixon Expo center on April 1!

Read the webpage for full information! Let me know if I can help you get your shirts/packets and let me know if we should be on the lookout for you on April 1st!!!

Tuesday, January 10, 2017

9 Year Old Checkup

This happy kid had her 9 year old check up today and moved up from .06th percentile to .16th! 😂 She's got a tiny body with a big personality! She's 45 inches tall and weighs 45 pounds! She's doing great all around and follows up with her Endocrinologist next month!! We are truly, truly, immeasurably and completely thankful for that! Thanking God for growth too!!! ❤️ She's doing really well and is especially loving drama this school year! She loves jumping on trampolines and watching Soul Surfer (Bethany Hamilton story) and Miracle Worker (Helen Keller story).  She has a great imagination and one of her favorite things to do is act out "scenes" on the trampoline!! Thanks for checking in and for praying for our girl!!

Tuesday, July 26, 2016

Not Sure What That Was...

I guess that was a random spam post this morning. So, while I was on here deleting it I figured I'd post a quick update!

Julianne is doing great for the most part! She has had a busy summer and I don't thing either one of us are ready for school to start again! One thing she especially enjoyed this summer was drama camp! If you know Julianne, then you know that is right up her ally! She had so much fun singing and dancing and performing.

This past weekend we went to a water park to celebrate Kent's birthday (only a month later than his actual birthday)! Julianne LOVED it! She rode every slide at least three times! She climbed to the top of every slide  tower we NO HELP AT ALL! It was awesome. Here's a video of her on the racer slide. It's really hard to see...she's the little, dark dot you'll see going down the slide! Ha ha!

Julianne is, unfortunately, having stomach problems again. We've tried all the usual remedies but it just continues to linger. She has an appointment to see her G.I. doctor at the beginning of August. Hopefully he will be able to help her.  In the good news department, Julianne had her 6 month Cardiology check-up and everything has been so good that she is now on an annual check-up schedule!!

Thanks for checking in on Julianne. She continues to amaze us and we continue to be beyond thankful for all God has carried her through!!!