Tuesday, January 10, 2017

9 Year Old Checkup

This happy kid had her 9 year old check up today and moved up from .06th percentile to .16th! 😂 She's got a tiny body with a big personality! She's 45 inches tall and weighs 45 pounds! She's doing great all around and follows up with her Endocrinologist next month!! We are truly, truly, immeasurably and completely thankful for that! Thanking God for growth too!!! ❤️ She's doing really well and is especially loving drama this school year! She loves jumping on trampolines and watching Soul Surfer (Bethany Hamilton story) and Miracle Worker (Helen Keller story).  She has a great imagination and one of her favorite things to do is act out "scenes" on the trampoline!! Thanks for checking in and for praying for our girl!!

Tuesday, July 26, 2016

Not Sure What That Was...

I guess that was a random spam post this morning. So, while I was on here deleting it I figured I'd post a quick update!

Julianne is doing great for the most part! She has had a busy summer and I don't thing either one of us are ready for school to start again! One thing she especially enjoyed this summer was drama camp! If you know Julianne, then you know that is right up her ally! She had so much fun singing and dancing and performing.

This past weekend we went to a water park to celebrate Kent's birthday (only a month later than his actual birthday)! Julianne LOVED it! She rode every slide at least three times! She climbed to the top of every slide  tower we NO HELP AT ALL! It was awesome. Here's a video of her on the racer slide. It's really hard to see...she's the little, dark dot you'll see going down the slide! Ha ha!

Julianne is, unfortunately, having stomach problems again. We've tried all the usual remedies but it just continues to linger. She has an appointment to see her G.I. doctor at the beginning of August. Hopefully he will be able to help her.  In the good news department, Julianne had her 6 month Cardiology check-up and everything has been so good that she is now on an annual check-up schedule!!

Thanks for checking in on Julianne. She continues to amaze us and we continue to be beyond thankful for all God has carried her through!!!

Wednesday, March 16, 2016

Heart Walk 2016

The 2016 Heart Walk is right around the corner! We'd love for y'all to join us in person or even from afar! As usual, we have team Julianne t-shirts available! They're $12 each and are available in youth and adult sizes up to 4XL. Email, call or text me if you'd like to order one. I need all orders by March 21st. We'd love for you to join Team Julianne! Visit her heart walk team page to join!

Monday, September 21, 2015

Eight Years Old

Eight. EIGHT! EIGHT YEARS OLD!!!! I can hardly believe my little sweetums turned eight.  Time is just flying by.  Sometimes I start to feel sad that she's growing so fast, but then I am quickly reminded of what a blessing and miracle it is that she IS eight years old! God is always good...in happy times and hard times and I pray that Julianne will cling to that all her life!  This post is definitely a happy one!!!

I love planning parties! So when Julianne requested a Wheel of Fortune party I couldn't have been more excited to make it happen!! We watch "the Wheel" every night and it was the perfect year to do this for her! Fortunately, Julianne's family was willing to help make it great! Kent lovingly (and sweat-ily...is that a word) built her wheel and puzzle board AND played the part of Pat Sajak, Grammy was a fabulous Vanna, Grandpa created the sound effects, Papa was in charge of party favor production, Mimi was a party hostess AND decorator and Aunt Laura generously volunteered to be the photographer! We couldn't have done it without y'all!!!!

I just love her face in this picture!! We have the same photo from the reverse angle on Instagram! (AdventuresInCapertonning)

Big money!!
I'd like to solve the puzzle!

Happy Birthday to our beautiful, smart, funny, tiny, Julianne!
We Love you so very, very much!

Tuesday, April 14, 2015

Oozing into 2nd Grade

Julianne finished her third year of Classical Conversations last week! Where is the time going?! *sigh* She's growing up so quickly. Much to Julianne's dismay, even though we're done with Classical Conversations for this year, we're still having school until the end of May. She is just a few lessons away from finishing 1st grade math and a few weeks away from finishing 1st grade Language lessons. We are hoping to get a jump start on 2nd grade!

Julianne's Cardiology visit went great! Her echo looked good, as did everything else and she's removing the stickers from her Holter monitor as I type. :)

Her G.I. doctor did some further testing and we are waiting on those results this week.  However, since last Tuesday she has not had ONE upset belly episode!! I am hopeful that this is the end of the tummy troubles.  We are continuing to pray that she's fully healed.

This weekend Julianne, along with her beautiful cousin, will be a flower girl again! She's super excited and has begun planning her own wedding again. Ha ha!

Thank you for your prayers for our sweet girl.  God has given us so much to be grateful for and one of those things is that SHE'S FEELING SO MUCH BETTER!!

Friday, April 3, 2015

Belly Troubles and Other Stuff

In December, just before Christmas, Julianne had some SVT episodes again. It was disappointing, but not totally surprising.  We know that as she outgrows her dosages of Diltiazem and Digoxin she will begin having breakthroughs and the dosage will need to go up.  She was so upset and crying as I called her Cardiologist's office that day and they told me to bring her to the ER if it didn't stop. I know God heard her cries and saw her tears because for the first time EVER she didn't end up having to go to the ER during her SVT episode. She was actually able to break it on her own and stay home as opposed to the usual result, which is an admission to the hospital.  We were encouraged by that for sure and incredibly thankful!! 
Julianne got a MAJOR hair cut! We cut off 10 inches!
In January, she started having heart palpitations along with LOTS of stomach problems.  We did an event monitor for a month, which revealed a different, but not dangerous, rhythm.  For now, she will just continue on her current meds and she sees her Cardiologist again this month.  The palpitations seem to have subsided and she's feeling much better heart-wise. :)

Unfortunately, the belly problems have continued.  It's aggravating and uncomfortable for her and she's beginning to lose weight.  All of the results on her "samples" came back relatively normal except one that was just slightly elevated.  For now she's on a dairy-free, low sugar diet (of which she is NOT a fan). The dairy-free has helped, but did not fix it. She will see her GI doctor again next month. 

She got her first hole-in-one, which was quickly followed by her second hole-in-one!
I can't believe she's finishing up first grade!! Crazy. She's doing so well and we're so very, very, very thankful. I will have more to post as Spring progresses and Summer begins...recitals, end of the year programs, weddings...it will be a busy, but fun, few months. :) Please join us in praying that she will be healed of these belly troubles and that she will continue to grow and be the healthy, little wild woman she is. :)

And she still loves to hula!

Monday, December 8, 2014

Growing...Sort of

She's seven! I can hardly believe it!

Fall 2014
Our tiny princess is 42 inches and 40 pounds. She's growing on her own growth curve according to her pediatrician and he's not worried about her size.

She plays piano with both hands in her weekly music class, dances ballet with a sweet and wonderful ballet teacher, goes to swim lessons every other week, goes to physical and occupational therapy once a week each and Classical Conversations (home school group) once a week. She keeps us busy!

Spring 2014

When Julianne is not doing school work or one of her weekly activities, she loves to pretend! Seriously, I have to remind her to tell people that she's pretending when she starts talking about her "children". Otherwise we get some pretty strange looks. Her imagination is HUGE! We love it!

She still loves to sing and is especially fond of For King and Country, Mandisa, Taylor Swift and anything her daddy is singing. Just recently she started enjoying Elvis music! We owe that to Lilo and Stitch. Being an Elvis fan myself, I'm not complaining!

Julianne LOVES dresses, especially Hawaiian dresses, and basically refuses to wear shorts, shirts or pants (unless they're UNDER a dress).

She also started watching the Star Wars movies with Kent and has enjoyed them so much that she just might be getting a light saber for Christmas (Don't worry...she doesn't read this!)!

She is enjoying reading more and more and her favorite books to read right now are the Frog and Toad books.  They're so funny! Really! You should read them!

Halloween 2014
G-tube closure surgery, May 2014
Our last real Julianne update was when she got her g-tube out (woo hoo!!). The hole was supposed to close on its own, but it did not. So, she had a quick surgery in May to close it.  Aside from returning to the ER for pain issues, she recovered easily and has completely ended the tube feeding chapter of her life!!!!!!!!!! Thank you, God!! She's eating well and is totally obsessed with bacon. But, who isn't really?

Julianne sees her Ophthalmologist this Friday and Cardiology again in February.  Medical-wise she's doing great! We are so very, very  thankful! This month marks two years with no over-night hospital stays!

God has filled Julianne's precious heart with love for Him and others and we pray that that will only continue to grow! We hope that her 8th year brings as much joy as the 7th did!

 Julianne, we are SO happy that you are our big seven-year-old and we love you more than you could know!