Julianne's Journey

"For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful,I know that full well. My frame was not hidden from you when I was made in the secret place. When I was woven together in the depths of the earth, your eyes saw my unformed body. All the days ordained for me were written in your book before one of them came to be." Psalm 139:13-16

Wednesday, March 12, 2014

Heart Walk 2014

It's that time of year again! Time for the Capital Area Heart Walk! We are excited to participate again this year and we hope you will join us in supporting the American Heart Association! It's a great day to spend time with your family and friends doing something fun and good for you! Join Team Julianne here!! Heart walk activities begin at 8AM and the walk begins at 9AM on Saturday, April 26th at the LSU Old Front Nine.

We are also selling t-shirts again this year!  They're $10 for youth sizes XS - L and adult sizes S-XL.  Sizes 2XL and 3XL are $11.50.  Proceeds will be donated to the American Heart Association. Please contact me if you'd like to order a shirt! I will need all orders by April 1st.

Front Left Chest
Back of Shirt



Saturday, February 8, 2014

The G-Tube Has Left the Body!!

Yup! You read that correctly! After nearly 6 years of having a g-tube poking out of that precious belly, getting hung on shirts, cramping her belly-sliding style, it is gone!! Gosh, I really just can't even believe we're at this point.  It seems like just yesterday I was crying over not being able to feed my baby like "normal", cleaning up a bed full of formula after a pump feeding disconnected in the middle of the night, and stopping gravity feeds because she just couldn't stop gagging and retching! Ok, who am I kidding? It does NOT seem like yesterday! This took a LOOOOOONNNNNNNGG time! It took a lot of work.  It took a lot of therapy. It took a lot of tears. It took a lot of prayer! But on Wednesday, February 5th 2014 we walked into Dr. A's office and told him Julianne hasn't used her g-tube since January 22nd, 2013.  It was a day I thought I'd never see! I used to joke that I didn't want to have to puree her wedding cake and it looks like I won't have to after all! Julianne now eats all solid foods.  No more purees.  The no purees thing started I guess around May-ish.  We started doing solid lunches. Then in August/September it was boom, bang all solid food.  It really surprised me how fast she went from a little solid food to all solids considering how long it took everything else feeding related. God has carried Julianne such a long way from where she started.  We are so very, very, thankful for this huge milestone!!!! Seriously....this is huge.

Julianne was not scared about her appointment at all.  She could hardly wait for February 5th to get here!
Excitement building in the elevator!


Waiting...

 waiting...

 waiting...

 still waiting.

It's gone!!!!!!

 She was so ready for that g-tube to be gone.  But you know what she wasn't ready for?  The gas that gets expelled through that hole now! I'm sorry, but I have no other way to describe it besides "tooting". Yes, her belly is tooting.  I was cracking up laughing. CRACKING UP! Julianne was disturbed to say the least.  "WHY IS IT DOING THAT!!!!"  This continued all day on Wednesday, a little yesterday and only once today. Poor girl...it was pretty funny though. I tried to make her feel better by telling her she's the only person I've ever know who can toot through her belly!! She was pretty excited when the toots returned to their usual location this morning ha ha! She also hates getting the gauze changed, but there's nothing we can do about that.  It's either keep it covered or have gross shirts all day long.  Dr. A said if it is still leaking in two weeks that she will need to see a surgeon to have it closed.  We are praying that will not be the case! Please join us in praying that it will close easily on its own. 

G-tube removal was such a big deal for us we spent the whole day celebrating.

 We went to the mall and she picked out a new dress!

 We met daddy for lunch!

 We rode the carousel!

 We picked up daddy from work and headed to...

 CHUCKEE CHEESE!


Happy G-tube removal day Julianne! 
We love you so much and we're so very proud of you!!

February has, thus far, been an amazing month!!! We have something else pretty unbelievable to share, but you'll have to wait until the time is right!!!! It's good. I promise. :-)

Sunday, January 5, 2014

New year, new app!

I downloaded a blogger app for my phone finally! This will help me update the blog more often! 

2013 was a great, great year for our household. Know why? This is THE FIRST year since Julianne's birth in 2007 that she did not spend one night in the hospital!!!! That's right! Not even one! She made one ER trip, but nothing overnight. This is totally awesome in my book. :)

In other totally awesome news, it has been nearly a year since we last used Julianne's g-tube. She has an appointment with her GI doctor in February and, God-willing, the g-tube will be gone, gone, gone! Woo hoo!!! We've told her we will celebrate however she wants...bowling, putt putt, chuck e. cheese....the choice is hers. She's pretty sure that she wants to do chuck e. cheese. :)

Our Christmas was beautiful and wonderful. It's joy to share the story of Jesus' birth with our girl. Here are a few pictures of our celebration:

We kicked off our Christmas with a Christmas concert! 

Then saw "Frozen" when it was super cold!

We also got our Christmas tree when it was super cold!

Look how grown up she's looking! I can hardly stand it!


Christmas caroling with our church!

Christmas shopping with mommy :)

Enjoying one of her new toys...trying to anyway. Coca wanted to play too. Speaking of Coca, Julianne had an accident that resulted in the end of her glowing glasses! She and Coca were chasing each other around the kitchen when she tripped and went face first into the door frame! Her glasses arm broke off and cut her face and the glasses bruise her around the eye. It could have been much worse! So I'm thankful that the major injury was to the glasses. She has some super cute new red ones. I will get a pic soon!! 

I hope you all had a merry Christmas and that your new year is full of hope and joy! 

Sunday, October 20, 2013

Guess who's SIX???

That's right! I can hardly believe it! Julianne turned six a few weeks ago! Every year is such a celebration for our family.  We so enjoy celebrating her life and remembering how thankful we are that God made us her parents! 

I've got party pics, but first here's a few six-year-old Julianne stats:

  • She's about to lose her 3rd and 4th teeth. One of them is almost totally sideways, but that booger just won't come out! I am hoping this will not mean an extra dentist trip.
  • She's very much into Disney princesses and sleeps with sleeping beauty every night!
  • Not only the princesses, but Julianne also loves the step-sisters and all the "bad queens"
  • She's totally obsessed with her own future wedding.  So far, she says she will get married at Zachary Community Church, on a Sunday, Grammy will be her flower girl, her groom will sing as he walks down the aisle, and she and Kent will sing a duet as they walk in.  I TOTALLY hope the singing thing happens!! That would be an awesome wedding! Just this week she added that her husband will be a mermaid and it will be my job to make him human, so I guess I will need some training.
  • She love, love, loves to look at her baby book, scrapbooks and photo books and hear the story of her "ages"..."Tell me the story of when I was 4!!"
  • Our smart little girl, is not only beautiful but also has become the guardian of playgrounds, play areas and pretty much anywhere you could find a crying or sad child.  She always goes to them to find out what's wrong and tries to make them happy.  It's so sweet. She told me that's her job. :-)
  • She's just as bold and courageous as she's ever been! I pray that God will continue that in her and that she will use that boldness to share the love of Jesus with people for years to come! 
  • Oh! And how could I forget, SHE'S EATING ALL SOLID FOOD!! NO MORE PUREES!!
  • AND she's still a tiny princess at 37 pounds and just 39.75 inches...tiny body, huge personality. :-) 
Now for the party!! She's been asking why we never have a Royal Ball for like a year, so we thought the perfect party for her would be a Royal Ball party! We worked hard to transform our house into a ballroom as best we could.  We are still pulling staples out of the wall! It was so worth it though. This was her first party with other kids and I think she really enjoyed it! It was supposed to rain all day so we ended up doing the whole party inside.  It wasn't exactly what I planned and became a little cramped in the kitchen, but all was well and the birthday girl loved her day! I hope she will remember it forever. I know I will! :-)




Royal Photo Area

The Royal Ballroom

Royal Dress-up Area

More Royal Dress-up Area

Our Cinderella

This little Prince's mommy (whom I've known for the last 16 of my own birthdays)
 gave me permission to post his pic! And aren't you glad she did?

I love this picture! Julianne just looks so happy!!
Royal Family Photo thanks to David Hebert

Cinderella and her Prince Charming

What a princess!

She loved every minute :-)

In Julianne's words, "When everybody leaves the spell will be broken" so she had to change out of her gown.




Monday, April 22, 2013

And the winner is...

The Baton Rouge area Heart Walk was last weekend and we had a wonderful time as usual! Our family and friends joined us for a beautiful day walking in honor of Julianne.  Team Julianne raised $1,123.00!!! Thank you so much for your donations and t-shirt purchases! It really does go to a wonderful organization.

This year, for the first time, we entered the t-shirt contest.  Julianne went on stage with Kent and did a fancy twirl to model her shirt. She loved every minute of stage time.  The girl was born to perform ha ha! After each team modeled their shirts all of the teams stood in front of the stage for the judges to make their decision.  It only took a few minutes before they began to announce the winners. It went a little something like this:

Announcer: "In third place GMFS!"
Announcer: "In second place Blue Cross Blue Sheild"
Announcer: "The winner is....TEAM JULIANNE!"
Julianne: "I won!?? We won!!!"

She was so excited! I honestly didn't even know she knew what a trophy was, much less that she had this secret desire to win one! She went on stage, they handed her the trophy and she immediately held it up high. Ha ha!! It was like she's been winning all her life because she knew exactly what to do.  Although, I think the cheers of the crowd kind of startled her. Julianne was so proud! When we got to the car she told us, "I was proud! My chin was up and I was smiling!" Oh goodness...it made me so happy to see her so happy...I almost cried! Just like the Grinch, my heart grew three sizes that day. :-) We were able to get a short video where you can very quickly see her hold it up high and then get scared by the cheers:



You can view another angle of video here!
"I won!"

 Here are a few more pictures from a great day!





Monday, March 25, 2013

A Beautiful Smile

Julianne hit a big milestone a little more than a week ago.  She lost her first tooth! I can hardly believe she's old enough for that, but she is five and a half now. I didn't even cry...until she went to bed, that is. :-) She was worried at first and started to have the quivering chin. I asked her what's wrong and she said, "I'm worried it's going to hurt when you PUSH my new big girl tooth in!" Once I explained that I will not be pushing any teeth into her mouth and it would grow on its own, she was BEYOND excited about the tooth loss! There was no way I could cry once I saw how happy she was! She loved the surprise the "tooth fairy" left her...the sleeping beauty doll in the pic below. The girl loves her princesses! So proud of my big girl. :-)


This weekend we went to Lafayette for Disney on Ice with Mimi and Papa.  It was wonderful! Julianne was all dressed up as Tinkerbell. When she saw prince Eric lift Ariel up high she immediately turned to Kent and said, "Oh Daddy! Can you do that to me?" So sweet.  She also chowed down on popcorn! I was nearly moved to tears. She's come so far.  So thankful. 



Flying high like Ariel

 Today, the children's choir sang at church and did great! While I didn't get any photos or video of the singing, I did get some cute pictures after church!

This picture is so "Julianne" right now...laughing and smiling!
This one is very "Julianne-ish" too :-)
I can't believe how grown up my precious girl is getting.  When I tell her that she says, "Mommy! I'm not grown up! I'm only five and a half?"  A few weeks ago Julianne's devotional asked, what job do you want when you grow up? Julianne responded, "I want to wash dishes and put them in the dishwasher and carry my daughter. And I want to be a famous doctor. A heart doctor and I will check the biggest patient in the world!" I love my little sweetums. ♥ She's reading and writing and learning so much everyday. It's such a blessing to watch her grow.

Julianne is doing so well with eating, that we haven't used her g-tube in more than two months! Her G.I. doctor said to call when she hasn't used it AT ALL in six months and she will be ready to get it out! It's just unbelievable.  It seems not so long ago that I would cry and pray and work so hard to get her to eat.  Her doctors would tell me "She'll eat eventually" and that would make me mad because I felt like they were brushing it off.  Now she eats so many things....she's still not feeding herself full meals.  We're still pureeing three meals a day, but smaller amounts now that she's eating on her own too.  Some favorites are goldfish, cheese puffs, canes sauce, fish, veggie wedgies, veggie bites...mainly soft or crunchy stuff. It fills my heart with joy to see her eating these things.  Thanking God for all He's carried our girl through!! That's all for now! Thank you so much to all who have joined and supported Team Julianne already in the Baton Rouge area Heart Walk!