This morning with Julianne was really, really good! She started off feeling out of sorts, just seeming uncomfortable so we gave her tylenol and a lower dose of oxy and she perked up! We had a wonderful time playing with a tub of water, ha ha! She saw a bathtub on Mickey Mouse Clubhouse and wanted to splash, so we gave her a little tub of water to play in. That soon turned in to Cookie Monster, Ernie, Elmo and all of the Mickey Mouse characters taking a bath. She had so much fun! It was the most "Julianne-ish" we've seen her since her surgery. It brought us so much joy to see her like that this morning. I'm so thankful that God gave us that wonderful play time with her.
After being awake and happy for a several hours it was time to get her left chest tube out (yay!) and make her really mad (boo!). I went with her for the chest tube removal. Just as a side note here, I used to have a really weak stomach for stuff like that. I can remember my Oma having had surgery and my mom and aunts were looking at the incision. I was on the other side of the room and just seeing them look at the incision made me so woozy that I had to leave! I was about to pass out! Now, there's not much that makes me queasy. So, seeing something like a chest tube removal is totally not a problem for me now. I guess God toughened me up over the last two and a half years. It's a good thing! Anyway, Julianne fought the sedation. She had a pretty hefty dose of Morphine and Versed and would not go to sleep. The chest tube removal was tough for her and tough for me (emotionally) to watch. We're glad it is out though.
After the removal she slept for a couple of hours then we went downstairs for a chest x-ray. After which, there was more sleeping. Then we put her in a cart and took her for a nice long walk around the 8th Floor (which is completely a cardiac floor now). She slept through some of it and gagged and retched through some of it, but it was good for her to sit up and get more of the fluid on the right side of her chest to drain. After the ride she went right back to sleep and has been ever since then.
We're hoping for more awake time tomorrow for sure! That was truly the highlight of the day! We're thanking God for such a treat! Except for the constipation and gagging, I would call today a good day! Please continue to pray for healing for Julianne as she continues to drain on her right side. Please pray for relief from her constipation issues and that we'll get enough liquid into her to combat the "slightly dry" kidneys. Every little issue that arises makes me worry. I'm really trying to just let it go because "Who of you by worrying can add a single hour to his life?" (Matthew 6:27). I try to remind myself of that everyday. Worrying won't help...prayer will. Please pray for peace for Kent and I and really, for all of our family who love Julianne. :) Sleep tight!