Monday, May 24, 2010

Floor Time

We made it to the floor. This is good. Its another step toward home. However, being on the "floor" brings a small set of challenges of its own, one of them being noisy neighbors, but we're cranking Julianne's sound machine way up! Anyway...she's doing well. The chest tubes are still draining. They're increasing the diuretics tomorrow to try and get rid of more fluid. We got a few smiles and fun this morning, but after that she was just zonked out! The pain meds are making her REALLY sleepy. She's no longer on Morphine...just Oxycodone and Tylenol. Tonight they're decreasing one of the pain meds with the hope that it will give her a little more awake time, but still keep her comfortable.

Overall, things are good! We're so very thankful for all of the progress! It will be really nice to get those chest tubes out because they ARE NOT comfortable. They have to quit draining first though.

Thank you so much for all of your encouraging words and prayers for our family. Its so nice to read all of your comments and emails. We don't always get to respond, but we ALWAYS read them. Thank you, thank you! Please continue prayers for our baby boo.


Anonymous said...

This is a great news! Julianne looks like she's doing better and better every day! We're very thankful for God's healing hands through Julianne's recovery! Take care, Robin, Patrick and Caroline

Ragincajun said...

We're praying for a room to yourself, but if not then good roommates (patient/parents)... I'm praying for strength for each of you and joy whenever possible. I often felt joy/dread for the floor, but ultimately that is the way you want to go before heading out the doors to go home. Home, what a great place to be, and we're praying for your return soon! Claire, Sarah, Maeve, Adrienne, Jenna and the gang will take good care of you!

Anonymous said...

Can I possibly be looking at the same baby as I did over the weekend?
Praise the Lord! What a remarkable recovery your baby boo is making.
She is a little trooper. We are so happy to see her on the floor now and feeling better, being weaned from all the meds and hopefully having those bad old chest tubes out soon. Will keep checking on "one of my favorite heart babies".

Jan <3

Anonymous said...

That is all wonderful news! She looks so good! What a precious girl! Still praying for you all!

Love you all,


Anonymous said...

Oh she looks great! We are so happy she is doing so well.
Love you all,
Aunt Gnome and Family

Anonymous said...

It is soooo good to see Julianne coming back around. What a miracle that she is recooperating so quickly.

One of the pictures looks like Mickey is kissing her little hand...sweet.:)

Julianne is the last thing on my mind when I close my eyes and the first thing when I open them. Of course I pray for her every chance I get.

I love you all . You are such wonderful parents.

I love you all

Aunt\Great Aunt Suzette

Anonymous said...

Praise God for your precious little girl! So encouraged to hear the good news! We continue to lift you up in prayer.
Erin C. & family

Drew Caperton said...

She looks great! And it's good to see some more smiles. We'll continue to be in prayer for the room situation.

Anonymous said...

What a precious smile! We love you all

Aunt Sarah, Frank and Kyle

Anonymous said...

Yay!!!! Floor time!
She looks so adorable!!
You'll be taking that sweet baby home in no time!!
Keep strong! Love y'all!

Carrie said...

She is looking great...what a sweet girl!

Rebecca said...

Did she really just have surgery??? Julianne looks amazing!!! She's a tough one with those pigtails! :)

Praying for a continued speedy recovery & to get those chest tubes out soon!

Love to y'all~ Rebecca

Anonymous said...

Uncle "Dutch" is hoping for a quick removal of those yucky chest tubes! OUCH!!!! What a cutie baby girl. Sooo brave. We love you all.
Love, Aunt Toni and Uncle Jake

Jason, Denyse, Hannah and Carter said...

She looks fantastic! What a sweet little angel. So glad you are on the "bEast" as it means you'll be home soon!

All our love,
The Englerts

Anonymous said...

I've checked out Mary Clare, Annabelle's blog, Maia at MUSC and now back to one of my favs again.
Just wanted you all to know SC is praying for you all.

Julianne looks wonderful!
She is a beauty.

Love, Jan Tompkins

Cindy said...

This is wonderful news. She is a beautiful baby. I will continue to pray for your whole family. Julieanne looks wonderful.