Sunday, February 17, 2008

We Made It!!

(First of all, I tried to post this yesterday, but did not have the blog set up to accept emails...so I'm sorry its late :(

Second of all, the server here has blogger blocked because its a "social networking site" :( Its not a problem for posting updates because I can email them. However, pictures are a little more difficult. We are attempting to post them through this email. I hope it works. If it doesn't I have no way to fix it. So, if you see a bunch of jibberish....just ignore it. If you see pictures...GREAT!)


Well, I had hoped to post Friday but time just slipped away as we made all the preparations for our trip yesterday. So, I'm sorry I'm a little late.

Anyway, Julianne and I woke up at 5:00 AM and by the time we got ready to leave our house at about 7:00 AM Julianne was asleep.

(By the way, is that onesie true or what?)


She rode contently in her sling through both airports



We made it without incident. Julianne couldn't have been better on the plane. She did get a little fussy toward the end of the 2nd flight but no major wailing or anything. She even sucked on her pacifier during ascent and descent! She has REFUSED to suck on her pacifier for the last several weeks so this was major. She won't suck on it anymore though. She's a smart little cookie.

Also, I was pleasantly surprised to find that the airplane restroom had a changing station in it. So when Julianne was stinking up our row I took her to the restroom and had no problem changing her.

We arrived in Boston at about 2:30 PM today to 28 degree weather. Brrrrr! WITH THE FEEDING TUBE STILL IN PLACE!! YAY!


We're all settled in at the Devon Nicole House. Julianne had some trouble going to sleep. I suppose its because we're in a new place AND she didn't sleep much today so I know she was exhausted. She's sleeping soundly now though. Julianne and Kent are all unpacked. I haven't unpacked my stuff yet because I'm just too tired. That will wait until tomorrow.

Monday Julianne will be admitted to the hospital for pre-operative testing. Then sometime on Tuesday she'll have her heart catherization and will spend another night to recover. On Wednesday we'll meet with Julianne's surgeon, Dr. Pigula, and finish up any consents and testing. She'll be discharged that day and we'll head back to the Devon Nicole House to snuggle our little bug. My family arrives Wednesday evening, so I'm hoping they'll come by. :) Thursday we are supposed to be at the hospital at 6:30 AM for Julianne's surgery. That's the schedule so far. I'll update if anything changes.

Please continue to pray for Julianne. Please pray for her safety and for the guidance of the doctors' and surgeons' hands. Also, that she'll remain healthy. Please pray for Kent and I as its going to be so hard to see them take her away. I think even harder than last time because now we know her SO WELL.

Thank you for the prayers and for checking in on us! We will post more tomorrow.

(Update on the picture posting, it didn't work. I had to go to a coffee shop to post the pictures. So, we'll do our best to post pictures, but at least we can post messages.)

12 comments:

Anonymous said...

Loved the pictures.....high maintenance is always okay in my book.... : )

We will continue to pray for the three of you. We know she will do just fine. I would love to be up there in the cold weather with you-all!!

Keep us posted down here. We'll be awaiting new information. We'll put her on the prayer chain.

Hugs & Kisses

A. Stac

Anonymous said...

Praise God , for safe travel and no incidents. What sweet sweet pictures. I especially loved the one with Julianne snuggled up to mommy in her sling. What an adorable little chocolate dumplin in her baby bunting.You are so sweet! We are praying and will be following you to Boston ; see you real soon. Love to you all, Grammie

Julie Miles said...

Glad to hear you made it to Boston safely and that Julianne did so well on the flights!

Praying all goes well with the cath and surgery this week. She's such a fighter that I'm sure she'll do great!

Anonymous said...

Glad to hear you had an un- eventful flight!! The pictures are too cute! We continue to pray for all of you, for Julianne's health and wisdom for the doctors.
Stay warm!!
Erin C.

Anonymous said...

I am so thankful for a safe trip for you all. We are praying for safety for Julianne through this entire process and the Dr. and nurses that will be attending her. I pray for comfort and peace for you and Kent also. The more I read about the hospital and the Devon Nicole House, the more impressed I am. God is so good for providing the way only HE can.

God bless!!
M White

Anonymous said...

I am so thankful for a safe trip for you all. We are praying for safety for Julianne through this entire process and the Dr. and nurses that will be attending her. I pray for comfort and peace for you and Kent also. The more I read about the hospital and the Devon Nicole House, the more impressed I am. God is so good for providing the way only HE can.

God bless!!
M White

Anonymous said...

Thanks for the pictures and the trouble to post them!! She is so sweet... you both are so lucky to have such a sweet patient baby and visa versa.
Love to all
Aunt Naomi

Anonymous said...

I am so happy to hear that everything went smoothly from here to Boston. I prayed for every plane that flew over my home Saturday morning just in case it was yours. So they were all blessed!

Julianne looks so calm and comfortable in the sling and snow suit. I think she gets the calmnest from her parents.

I will pray for all of you and that God gives you strength as you see Julianne go off to surgery.

In our church bulliten today it said that the candle in the church sanctuary will burn this week for Julianne Caperton.

I love you all and I wish I could be there with you.

Love you Aunt\Great Aunt Suzette

Anonymous said...

Such a sweet family - I am praying for each of you as well as all your caregivers. Thank you for keeping us updated.

Love NSG Aunt Sarah

Anonymous said...

We have added you guys to our prayer list! I know we do not know you but we are praying God to give you peace and protection and that He guide the doctors and nurses hands. May you put all your cares upon Him!

Anonymous said...

We will be praying too, especially for God to send emotional support to you guys while you are there. I know you're anxious for the family to arrive. Kiss that little one for us! We can't wait to meet her!

Love to you all,
Judy & Neal H.

Scott, Rebecca, Wyatt & Annabelle Butcher said...

LOVE the onesie!!! High maintenance takes on a whole new meaning with a heart baby! We are praying for Julianne, Kent and you daily. We'll be checking on you all and look forward to seeing the updates.
Lots of prayers coming your way, Julianne!
Love~ Rebecca