I also wanted to say that I hope the last post didn't sound like I was upset with her care team here that they didn't know what was causing Julianne's poor function. I wasn't saying that at all! They're doing an EXCELLENT job of taking care of Julianne and doing the appropriate testing to try and find out what's happening. All I was trying to say was that sometimes there just aren't any answers and we understand that. We are TRULY, TRULY grateful for the wonderful care she's had and we couldn't ask for a more dedicated care team for Julianne. :)
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