She drained another 140ml last night, so the chest tube definitely wasn't getting removed today. It turns out Julianne also has an air pocket in her pleural area, which is the area between the chest wall and the lungs. The treatment for one if these is, guess what, a chest tube. She already has one so....we'll just watch it. She was put back on 1 liter of oxygen today as her doctors thought having the extra oxygen might help get rid of the air pocket. Julianne also has to stay hooked up to suction (which is what powers the chest drain) since she has this air pocket. That means that she can't leave her bed without being hooked up to portable suction, which is as loud as a lawnmower! Ha ha! I just told her its just like when daddy mows! She was ok with that. :)
They're still balancing Julianne's diuretics with her lab numbers. The theme seems to be "delicate balance." She's on some sodium and potassium supplements now. The good news is that her "dry-ish" kidney issue is definitely under control!
The highlight of today was going to the playroom! Julianne was so excited to finally get out of the cart and onto the floor! I asked her, "Do you want to get out?" and she said, "Ya! Ya! Ya!" She was so excited she was bouncing in her seat. We loved it! Once she was out we still had to keep her on a short leash...literally. The chest tube isn't all that long! It was fun. I think we pooped her out. She took an almost 3 1/2 hour nap this afternoon.
Today was another really great day with our baby boo! Everyday is a miracle! We are so thankful that God has provided for us to be here with Julianne everyday. I can't imagine how hard it must be for parents to leave their child here because they have to go back to work. I'm very grateful that we're able to stay with her 24 hours a day. Thank you so much for all of your help in making that happen! As I've said before, we've been blessed with so much more than we could ever deserve!
And now for pictures:
This is Julianne's chest tube drain. It has bubbling blue water in it. In the playroom Julianne said, "I wanna touch water." So we told her she could. Then she said, "I wanna swim in it!" It is a pretty blue...but a little too small.