Wednesday, March 17, 2010

Cardiology Update

This is just a "quick" update about Julianne's Cardiology appointment today. She did pretty well. We talked a lot about what was going to happen before we got there and she seemed ok until it was time for the pulse ox reading...then it was all over. She did well with the echo and excellent when it was time to visit with Dr. Crapanzano. We are making some adjustments to her medication Amiodarone. She has to have most of it out of her system by the time of her cath on April 28th. The reason for this is that they will try to "stir up" her SVT causing Arrhythmia in the cath lab and, if they can find it, eliminate the pathyway by doing an ablation. Unfortunately, Amiodarone stays in the system for like 90 days! So....Amiodarone is being cut in half and we're adding Propranolol and Digoxin. That brings the total medication count to 11. The Propranolol and Digoxin are to help prevent any break through SVT. Seven days before we leave the Amiodarone will be stopped completely. Dr. Crapanzano said to just be prepared that an SVT episode would probably mean an ICU admit and IV meds. We DEFINITELY don't want that to happen. We are supposed to check Julianne's heart rate using the pulse oximeter every few days to make sure its where its supposed to be...not higher than 160 or lower than 65. Please pray that this Amiodarone wean will go smoothly, with no SVT issues and all will be well for the cath on April 28th.

In the awesome news department...Julianne drank - DRANK!!!! - 30ml of whole milk today!! That's 1 ounce! She took each sip totally on her own. Normally, I have to pour it in her mouth or squeeze the sides of the cup to get it to pour into her mouth. This time I told her to take a sip after each bite of baby food and she did! Now, she didn't really express any enjoyment in drinking the milk. She was pretty much ready to be done after like 10 sips, but she continued and drank 30ml from her little yellow cup in her own little hands. Wonderful. :) I tried it again this evening, however, and she wasn't really into it at all...hit or miss I guess. It was still a great accomplishment for her and I'm very thankful for it!

Its no secret that I love taking pictures of Julianne. The poor kid probably thinks the camera is an extension of my body! We have an unbelievable amount of pictures of Julianne. Well, today was no different:






I have these two basket-like floor cushions that I keep stacked up with a pillow on top of them. They look like this:

And yes, they often have a cute, bow-headed little girl climbing on them. I am loving that Julianne feels free to take the pillow off, take the floor cushions apart and make herself comfortable. Like this:


Its a great reading spot for her! Never would I have imagined they'd be so useful.

8 comments:

Mark said...

Precious ... Precious ... Precious! Everything about this little angel is precious!

Will pray for the SVT issues.

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mdf

Anonymous said...

Absolutely agree with Mark! Precious indeed ! How very blessed am I to be called "Grammie" My prayers are right there with you three. I just love the wicker cushion pics that work their way up to the grand finale ...Julianne content as can be reading her little book. So heartwarming! Love you!

Elysmom said...

great pictures!

jan tompkins said...

These are just the cutest pics of Miss Julianne. It's wonderful that she loves books so much already.
Will keep her in our prayers and remember that God is with you on this journey.

Drew Caperton said...

Love the pic of Kent and Julianne and the cool way she's expressing herself (with the floor pillows). The Fort Worth Capertons are praying for Julianne. Thanks for taking the time to keep everyone in the loop. It means a ton!

Drew Caperton said...
This comment has been removed by the author.
Anonymous said...

Oh my gosh! You should never worry about posting too many pics of Julianne because we never tire of seeing the wonderful new steps she takes everyday! We love our little miracle neice!
Love Aunt Gnome

Anonymous said...

LOVE, LOVE, LOVE the pictures. We have you all in our prayers for a smooth transition!

Luv
A. Stac