Things have been going really well. Julianne has had a lot of follow-up appointments in the last two months and they've all gone well. The best news we've gotten was from the Ophthalmologist. If you remember, Julianne was diagnosed with a severe astigmatism of 3 diopters. By June it had gone to 2 diopters, still a moderate astigmatism. This December was the "last chance" appointment. If it hadn't improved we were going ahead with glasses. Well, the doctor called it a "remarkable improvement"! Julianne's astigmatism had gone down to 1/2 diopter, so little that it doesn't even require correction!! God even healed our baby's eyes. We are so thankful. Although she would have been really cute in glasses, we are relieved to not have to add one more thing for her to deal with.
The Cardiology appointment went well. Everything looked good. Julianne's next appointment is in March. After that scheduling for the Fontan will begin.
Julianne's G.I. appointment went as expected. The doctor wanted to try a gastric emptying study and I told her Julianne has already had 2 of those and they both showed normal gastric emptying. She had the results of one of them in her files and agreed that a gastric emptying study wouldn't give us any new information. The reasoning for wanting a gastric emptying study was the gagging. Yes, the gagging. Its back. Its definitely not as bad as it has been in the past, but still worse than it was over the Summer. She has had what has seemed like back to back to back colds over the last couple of months and that always causes gagging problems. Right now, its really just gagging and sometimes retching during oral feedings and in the hour or so after her breakfast.
The Endocrinologist appointment was fine, as well. He ordered labs to test Julianne's thyroid since she's being treated for Hypothyroidism now (due to a side effect of Amiodarone. Labs did not go well. It was no surprise that they couldn't find a vein. So, finger-stick it was. After two different finger-sticks, drop by drop blood collection for nearly an hour, dropping an entire tube of blood on the floor and collecting 5 small tubes of blood, Julianne was worn out and we were so happy to get out of there. Thirty minutes later I got a phone call that they couldn't use any of the blood they collected!! (WHAT!!!) I'm sure you can imagine how frustrated I was. I know we need those labs, but I hate to put Julianne through all that again. I called back and spoke with the doctor about my concerns and we agreed that I should take Julianne to her usual Our Lady of the Lake lab and just have the results faxed to him (he's not in the OLOL network of doctors so they use a different lab). Julianne will have those labs drawn later this week. Ugh...
Julianne has a Neurology follow-up coming up soon and other than that, no planned appointments.
We're continuing with Physical and Occupational therapy. Both are going well. Julianne is scooping and pouring and beginning to mash play-doh and will even try to spoon feed herself small amounts of pureed food if I convince her its going to be fun. Julianne did bite off the end of a "'Lil Crunchie" (like a baby cheeto). I was so excited!! She had started munching "Veggie Straws". Then she quit after a bad cold. Now three-ish months later she's started to "chomp" crunchy stuff. She doesn't usually bite off anything, but its a start!
November and December were great. We had a lot fun with our baby boo and traveled quite a bit. Here's what we did:
Christmas morning we read the Christmas Story and then read the Christmas Story again from Julianne's bible. :)
She opened her stocking!
We are excited to report that we will, more than likely, move into our house next weekend! We've (We as in, us, our parents, other family members, friends, and a few strangers) been working on it for 3 months and its almost ready!
I hope to update more frequently now that I have the laptop back. We have some great videos that I hope to post sometime soon, so be on the lookout!
Thanks for checking in on us! We are thanking God for a wonderful year past and for giving us a great start to a wonderful new year!