"Of 98 children with HLHS studied from 1971-1986, only one child survived and 97 died. 15 died on the first day of life, 70 died within the first week, and 91 died within 30 days of birth. Cynthia Morris, Jacquelyn Outcalt and Victor D. Menashe Pediatrics 1990 859:977-983"
Had she been born a little more than one generation earlier, she would have very likely not made it. We are so very, very thankful that God has given surgeons, doctors and nurses the wisdom and knowledge to give our little baby boo and so many others a chance at life. God has given us another year to love our baby girl here on earth and we cannot even express how grateful we are! We truly believe that God has given us a miracle.
Now, about the birthday party. Julianne has a couple of favorite things: Books and Balls. So, we decided to give her a birthday themed with one of her favorites and we chose balls! We had a little ball party on Saturday with Julianne and both of our families. We filled an inflatable pool with balls, played a ball toss game, attempted to make a ball-shaped cake and had ball shaped snacks, favors and decorations. I knew I would really enjoy planning my kids' parties one day, but I had no idea I'd LOVE IT!!
Julianne did ok for the party. She really enjoyed the ball pit. She liked the ball toss game when it was her turn, but got a little freaked out over all of the excitement during others' turns and ended up having to go outside with daddy while everyone finished playing. Julianne DID manage to hold back the tears during the WHOLE birthday song this year. She cried right after though. She did not eat any cake, but ate a good bit of ice cream. That was an awesome feeling to see our little girl, who so recently wouldn't eat anything, eating ice cream at her birthday party. She then opened her sweet gifts with the help of her daddy. Once again we went WAY-HAY-HAY overboard with the pictures and took more than 200 that day. The poor kid probably went to sleep still seeing flashes in her eyes.
It was a special day and we thoroughly enjoyed it!