Julianne is doing well. Yesterday was a pretty uncomfortable day for her. Even with Morphine, she just couldn't get comfortable. She was doing a lot of gagging, coughing, crying, startling and just being restless. By the time we left at about 9:00 last night (you're not allowed to spend the night in the PICU here) she already seemed more comfortable and was sound asleep. She'd gotten some Tylenol, in suppository form, and it seemed to help. We called to check on Julianne during the night and got good reports. She slept all night and started to get uncomfortable again this morning. She got more Tylenol and did well after that. She's spent the day napping and doing some usual "Julianne stuff"... grabbing her mommy's hair, flailing her legs around and chewing on her fingers. She's still a little tired and swollen and, as I'm sure you can imagine, seems like she's sore from the surgery.
At about noon they started Julianne on some Pedialyte through her g-tube. Its running really slowly right now. Since she hasn't had a large amount of "food" in her belly since November, they're starting her pretty slow. It will be increased every 4 hours and eventually be switched to formula. The goal is to eventually get her on bolus feeds. A bolus feed is when she'd get her full feeding all at once, rather than gradually over 3 to 4 hours. With bolus feeds, she'd be fed every 3 to 4 hours rather than continuously, as she has been since her release from Ochsner in November. She'll also begin getting her home medications through her tube today. Her lasix dosage has been upped, so that will definitely help with her "puffiness."
Julianne is expected to spend one more night (tonight) in the PICU and be moved to the floor tomorrow. We're still hoping for her to be discharged either Friday or Saturday.
Other than that, there's not much going on. Thank you so much for your prayers for Julianne. We are always grateful that Julianne has so many people who pray for her and who care so much about her. Please continue to pray for her recovery.
Since I'm finished with the post and Julianne is still asleep, I thought I'd post a few pictures that I haven't had a chance to post: