The nurse came in at one point and noticed Julianne smacking her lips and we told her she'd been doing that and that we though she may have a dry mouth. After the doctor finished the arterial stick I asked him again about her eyes only looking to the left. He said he was worried about that because she didn't look like this when he saw her before. So, the attending doctor came in and talked about the possibility of a seizure because of the eyes looking to the side and the lip smacking. Neurology came and checked Julianne out and was concerned because of her eyes only looking to the side. He tried ALL KINDS OF STUFF to get her to turn and nothing worked. It was somewhat inconsistent with a seizure though because it had been going on all day. They decided to do a head CT to check for any bleeding in the brain which could possibly cause that sideways gaze. At first they were reluctant to send her to another floor for the testing because of the fragile state of her heart. But they decided that a doctor from the CICU would accompany her and she'd only go down when they were absolutely ready and return immediately. So we were just waiting for the call for her to go down to the 2nd floor (sorry for this LONG LONG story...anyway). At the last minute the resident from Neurology came back and said they put the head CT on hold for the moment because they wanted to just try giving her Benadryl because they realized she could be having a reaction to Reglan, a motility drug that she's been on since she was 4 weeks old. They thought that the new heart medications could be causing her to metabolize her old medicines differently. If that was the case, we should start seeing results in like 5 minutes. So, they ordered the Benadryl. While we were waiting for that to come up my mom and I went downstairs to get some dinner. When I came back up 30 minutes later Julianne was a different baby! Her leftward gaze was broken!! The Neurologist was able to get her attention using a rattle, calling her name...everything she should be doing! We were SO SO SO relieved to see this (in case you're wondering this Benadryl stuff all happened during the time of the Plains Church Prayer meeting :) and SO SO SO thankful!
So, to sum it all up. Julianne is somewhat back to "normal". She's still sick because of her heart function, so she's going to be more tired and not really up to par, BUT she's moving her eyes and responding to us and we are VERY thankful.
Thank you so much for all of your faithful prayers for Julianne, for us and for her medical team!! We were pretty scared for her when the talk was brain bleeds and seizures. Please pray that tonight continues to go well and that Julianne's heart function would improve and please join us in our thankfulness that her altered gaze was due only to an allergic reaction and not anything more serious. We will update more tomorrow.
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