Don't worry. It's not a gruesome detail or anything.
When the Perinatologist first gave us the diagnosis she told us the baby "will probably either die or be severely handicapped". We've since learned that is simply not true! I think, had we already been with our current, Baton Rouge, doctors we would have never heard those words.
My hesitation about mentioning that detail is that I don't want to be a discouragement to other families facing the same diagnosis. One of the purposes in sharing her story in the first place is to ENCOURGAGE other families! However, I feel that if I don't share that detail, I can't adequately express how we felt getting that diagnosis, how hurt we were and how much hope God has instilled in our hearts since that day. So, we mentioned it. Whether or not its in the story is up to WBRZ. They are the ones editing it after all.
So, if you're in the Baton Rouge viewing area, check out Julianne on WBRZ on Friday, the 25th at 6:00PM! I will also post a link to the story after it airs. There was no way to share all that is in our hearts during that brief interview, but my prayer is that even through our nervous voices and my bulging, nervous eyeballs, God would be glorified through her story. :)