Friday, April 16, 2010

A Change In Plans

Well, as the title of this post reads...we've had a change in plans. We are no longer leaving for Boston on April 26th. I received a call from a lady in the scheduling department at Children's Hospital Boston last week. She said, "I'm afraid I'm calling with bad news." My first thought was that insurance said they wouldn't cover the surgery (we have a different insurance company than we had 2 years ago). I breathed a huge sigh of relief when she told me that she was calling to reschedule Julianne's surgery. It seems that Julianne's surgeon, Dr. Pigula, is unavailable to do surgery at the originally scheduled time. So, our new dates are:

  • May 18th Pre-Cath work-up
  • May 19th Cardiac Catheterization and Brain MRI
  • May 20th Pre-op work
  • May 21st Fontan Surgery
I was somewhat relieved to hear the change in plans because April 26th was coming up much too quickly for my liking. I've found myself drifting off to "what if" land in my head lately and that is not a fun place. Its a daily struggle for me not to worry. Sometimes I actually say, out loud, "STOP! You're not going to think about that! God's plan is perfect". If anyone saw me they'd think I am crazy. Its definitely harder this time knowing all that we know from our past experiences about what can happen. There are a lot of "what if's" but God knows what He has planned for Julianne and His perfect plan is what brings me peace.

And what's a blog post without pictures, right?






Doesn't she look so grown up here? Oh, I can't stand it!

9 comments:

allison said...

look at her! She's such a big girl! Yes, getting in a few more weeks of spring before the Fontan is a good thing:)
Thinking of you all!

Rebecca said...

Oh, YUM! I could just eat her up!!! Y'all she is getting so big and looks more and more like a big girl!
Praying for your hearts as you prepare for these new dates...

Blessings~ Rebecca

BadMammaJamma said...

She is a big girl and I completely understand what your saying. I keep begging my kids to stay little but they won't listen to me.

Jason, Denyse, Hannah and Carter said...

You're not crazy...just a great mom! The 3rd surgery was by far the hardest only because this is a little girl you've seen grow for years now (not just days or months). It's much harder to let go when this strong bond has occurred and strengthened over the years. I remember Hannah seeming just fine, so why do I need to bring her in now!!! On the flip side of it, you know it's coming and you're just ready to be done with it and get back to "normal" (whatever that is anymore).

We'll be thinking and praying as you prepare for Boston. May God's peace continue to fill you as I know it will.

Love ya'll,
Denyse

Emma Kate said...

I'm glad to see that you're happy with the change of plans. You're such a great mom...not crazy at all. Sometimes I have to talk to myself too :) It is such an encouragement to see you resting in God's perfect plan for your family.

Earnestly praying for the peace for you that only God can give.

Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforst us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves have received from God.

II Corinthians 1: 3-5

Rachel

Anonymous said...

Such a blessing to see her playing ball and looking so grown up and so seriously CUTE!! May God continue to give you peace and may you rest in HIM! I will continue to pray for your family and the medical staff as you prepare for Julianne's surgery.

God bless,
Melinda

Lindsay Dean said...

So cute I can't stand it! She has grown so fast and I'm sure you are feeling too, I cannot believe it is time for her Fontan! Praying for you all in the coming weeks ahead!

Anonymous said...

Julianne has developed such a combination of personality of her Mom and Dad! What a wonderful combination of two faithful loving individuals that are truely God's children.

You are right Jessica it is so easy to get sucked into the what if's. Just continue to pray when you staart spiraling down as I know you do and God will lift you up and will whisper in your ear "I am with you always".


God bless you all.

Many Hugs and kisses from
Aunt Suzette\the great aunt

Anonymous said...

Julianne has developed such a combination of personality of her Mom and Dad! What a wonderful combination of two faithful loving individuals that are truely God's children.

You are right Jessica it is so easy to get sucked into the what if's. Just continue to pray when you staart spiraling down as I know you do and God will lift you up and will whisper in your ear "I am with you always".


God bless you all.

Many Hugs and kisses from
Aunt Suzette\the great aunt