"For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful,I know that full well. My frame was not hidden from you when I was made in the secret place. When I was woven together in the depths of the earth, your eyes saw my unformed body. All the days ordained for me were written in your book before one of them came to be." Psalm 139:13-16
Friday, April 16, 2010
A Change In Plans
Well, as the title of this post reads...we've had a change in plans. We are no longer leaving for Boston on April 26th. I received a call from a lady in the scheduling department at Children's Hospital Boston last week. She said, "I'm afraid I'm calling with bad news." My first thought was that insurance said they wouldn't cover the surgery (we have a different insurance company than we had 2 years ago). I breathed a huge sigh of relief when she told me that she was calling to reschedule Julianne's surgery. It seems that Julianne's surgeon, Dr. Pigula, is unavailable to do surgery at the originally scheduled time. So, our new dates are:
May 18th Pre-Cath work-up
May 19th Cardiac Catheterization and Brain MRI
May 20th Pre-op work
May 21st Fontan Surgery
I was somewhat relieved to hear the change in plans because April 26th was coming up much too quickly for my liking. I've found myself drifting off to "what if" land in my head lately and that is not a fun place. Its a daily struggle for me not to worry. Sometimes I actually say, out loud, "STOP! You're not going to think about that! God's plan is perfect". If anyone saw me they'd think I am crazy. Its definitely harder this time knowing all that we know from our past experiences about what can happen. There are a lot of "what if's" but God knows what He has planned for Julianne and His perfect plan is what brings me peace.
And what's a blog post without pictures, right?
Doesn't she look so grown up here? Oh, I can't stand it!