When the power went out we entertained ourselves partly by listening to the radio. Julianne enjoyed it, as well. The girl LOVES country music (much to daddy's dismay). Try to ignore the song (its kind of lame) and just check out her smooth dance moves:
With the power out and no where to wash diapers, we temporarily went back to disposables. I'd bought some just in case, so that was good. Unfortunately, we did not bring the pack n'play with us (my parents have a crib) for a "just in case" moment. So, when we moved over to my grandparents house Julianne had to sleep in her infant travel bed. She usually sleeps with her feet sticking out through the slats of her crib and when I walked in to check on Julianne as she was going to sleep in the travel bed I saw that she had her feet up on the wall, scratching it with her toenails! I guess she thought if she couldn't put her feet through the side, she'd just put them over it!
Julianne has a very busy week coming up. Tomorrow she has the first of her Synagis shots. These are the monthly shots she recieves from September to March to help protect her from RSV. Tuesday she has a gastric emptying study and physical therapy. Wednesday her special instructor therapist is coming to our house. Thursday, she has occupational therapy and Friday, the vision services therapist is coming out. Hopefully, she'll be having a birthday party on Saturday. I guess that depends on what hurricane Ike ends up doing. We'll post an update later this week about whether or not the party will have to be rescheduled.
Julianne is learning new things everyday. Its just amazing to us the things that she can do! Just this morning I was carrying her out to the car and we heard a dog barking. She looked at me and said, "Daw," "Daw" that's "dog" in Julianne language. She is continually progressing!
Julianne's reflux does seem to be rearing its ugly head again. Julianne normally can't vomit anything! Her Nissen fundoplication surgery made that "impossible." Well, its possible and its happening. She typically gags and retches 6-7 times a day with no vomiting. Now, she's still retching 6-7 times a day but vomiting 1-2 times. She's not vomiting a whole lot, but its enough to make us concerned. I spoke with her doctor right before we evacuated and he said that her upper G.I. showed that the Nissen looks like its coming loose. That's a bummer... He said that usually they don't come loose this soon. Julianne is having the gastric emptying study on Tuesday and then after that we'll talk about possibly tightening the Nissen. I'm not sure what that entails yet, but I'm hoping that it is nothing major. We'll make that decision when we have more information.Thanks for checking in on us. I hope you all faired well in the storm and hope that we will not be hit by another one at the end of the week. :) Thank you, as always for your prayers. Please keep Julianne in your prayers as she has her study on Tuesday and as we face the ongoing gastrointestial issues.