Well, Julianne is 9 months old today! I can hardly believe it. It seems like she's still a newborn (one huge newborn, that is). She had her 9 month check-up with the pediatrician today and weighed 22lbs, 10oz! She is 27 inches long and has a head circumference of 46 cm. Julianne's doctor says she's in the 50th percentile for head growth (he was really happy about that), 35th percentile for height, and 95th percentile for weight. As I mentioned before, her weight goes up in almost a straight line on her growth chart. Julianne's doctor feels that she's getting a little too big. While they'd rather her be on the heavier rather than lighter side because of her heart, they don't want her to be huge. He also felt that Julianne's weight may contribute to gross motor delays as its more difficult to support a larger body. So he's decreased the volume of formula that she receives each day. Hopefully this will create more of a diagonal increase in weight on the growth chart. Julianne had labs drawn again today. This time it was to test whether or not she has cow's milk and soy anti-bodies. The results will affect the decision of whether or not she should be switched to a less elemental formula now.
Julianne had her cardiologist appointment on Friday. She did really well. Her tricuspid valve is actually less leaky than it was in the previous echo. The ventricular function is better than the previous echo as well. We are so thankful to God for all of these improvements! The aorta is still narrowed, but no more than on the last echo, so it's not a concern right now. Julianne's blood work from Friday did show a slightly higher than normal thyroid level. This is more than likely due to the Amiodorone. Julianne's pediatrician, cardiologist and the endocrinologist will be discussing how to treat her and will let me know in the next couple of days. It will probably just be another medication. Today she is wearing a Holter Monitor to record what's going on with her heart over the next 24 hours. This is just a routine test that Julianne has every couple of months. The next cardiologist appointment isn't for 2 months!
Therapy is going well. Julianne seems to be showing a little more interest in the rice cereal and her motor skills are improving daily! Right now, the occupational therapist is working with Julianne's pediatrician to form a plan to get her off of continuous night time feeds and onto a feeding schedule more similar to that of a "normal" 9 month old. She's still gagging and retching with the Bolus feedings. It has been less over the last few days though. We've tried some different positions for her while getting fed. While it's not perfect at least she's not gagging and retching with EVERY feeding now. Usually she'd gag/retch 8-10 times a day. Over the last few days we haven't had more than 6 per day. Its not much, but its an improvement and we'll take it!
Thanks for checking in. We're hoping and praying that we'll see continued improvements in development and eating and less gagging. :) Thank you so much for your prayers!!