"For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful,I know that full well. My frame was not hidden from you when I was made in the secret place. When I was woven together in the depths of the earth, your eyes saw my unformed body. All the days ordained for me were written in your book before one of them came to be." Psalm 139:13-16
Friday, October 12, 2007
Sorry No Update Yesterday
We were both pretty tired by the end of the night. Julianne seems to be having a lot of trouble keeping her feeds down. She threw up all but one tube feeding last night. So, I spent most of the night up and down changing blankets and shirts and towels. Of course, I also wanted to just sit and watch her get her feeding to make sure she didn't throw up and I'd be sleeping and the nurse wouldn't notice. I felt like a cat, just getting to sleep in short intervals. She has to be able to eat, I believe its 50 cc's, from a bottle (and keep it down) before we can leave. We've only gotten to 7 cc's in the last couple of days. Now she's just being tube fed because she's having such a hard time keeping it down. We're going to try a small amount in the bottle later today.
Really, that's been our only set back. Julianne's chest x-ray came back good, hearing test was perfect and they were able to successfully draw her labs today (yesterday they couldn't find a vein). They also took out her pacing wires. Soon we'll have a completely wireless baby. All she has left are the leads to monitor her heart, her pulse-ox monitor cord and the feeding tube.
We got to take Julianne for a ride around this floor in a stroller yesterday. That was pretty fun for us! I took pictures, Kent pushed.
One more thing, we went ahead and purchased our airline tickets for next Thursday. The worst that could happen would be that we'd have to change it, right?
Thank you for your prayers for Julianne and for us. She really is doing well aside from her feeding issues. God has comforted Kent and I through the surgery and all of the major stuff that's gone on over the last 3 weeks and I know He will continue even now as we try to get her to eat.